Sharing MUCH more - - -

Well, yesterday we finally found out that my various difficulties – particularly my wracking cough and a miserable lack of energy – have had good reason. Apparently I’m not through with cancer.

The rare malignancy called a desmoplastic melanoma presented as a growing tumor on my right shoulder in the first two months of 2013. By March it had been biopsied and diagnosed as cancer and had to be removed. Problems with the transitions of my Medicare coverage and various blunders (mostly mine, I’m sure) caused the actual removal of the lesion to be delayed until June 3rd, by which time it had reached about the size of a tennis ball with the upper third standing above the shoulder and the bulk of the tumor intertwined with the skeletal structure. My surgical oncologist did a remarkable job of excising the tumor and leaving no fragments that could contain cancer cells. Later tests and the cautionary use of radiation to the shoulder area gave everyone confidence that the entire cancer was eliminated. Even a sentinel node biopsy in October revealed that my lymphatic system was clear also. However, we now know a year later, that some “scout” cells had migrated into the right lung and until July of this year, did not show up on any scans. A deep and incessant cough developed in July and a chest xray was ordered, resulting in the picture of a “spot” which needed further study. A CT scan showed it to be two masses, one looking like a medium-sized egg and the other, about a third of that size, positioned above the larger one.

A first biopsy, taken while a bronchoscope was being used, was ineffective in giving any clear diagnosis. So in mid September, a PET scan was performed on one day and on the following day, a CT scan-assisted needle biopsy of the larger mass. These were finally read, studied and revealed to me yesterday, Sept. 26. The biopsied material matched the tumor that was removed last year.

Much new testing and decision making regarding my case will ensue, beginning Oct 1, with some kind of surgery and/or treatment projected to begin during October. I will continue to be my positive self, enjoying all I can manage of this good life of a pretty lucky man. I am not suffering the way billions of humans have endured and still suffer day after day. I am not (as far as I know) slated for a horrible death at the hands of fanatics. I am living a sweet and enviable life with a lovely golf course at my back gate and an even lovelier little blonde to sit with me in the patio swing to watch glorious sunsets. I will not indulge in pity parties and I suggest that anyone who relates to me at all, do so in the same old way. Laughter is always good medicine.

With the wonders of medicine and scientific advances, there is a decent chance I will yet live to watch my 8-year old grandson grow up and begin his adult life. Perhaps even some more golf will be in our future and I still look forward to the day I play a reasonably good round but he bests me in style! If none of this scenario is to be, then trust me to go in peace with the theater in my mind reeling out the great story I am confident my grandson’s life will be.

Sharing a Bit - Sept 9

Hmm, looks as though I missed the month of August entirely! At least, I missed on making any posts here. My friend Al mentioned this lack of posting recently and said he assumed it was due to my many ailments and dealing with yet more ailments my wife has been suffering. Then also there has been the need to keep up with business, which goes on no matter how I may feel on a given day. And this was all true.

But here's to all my friends who are concerned and have expressed desire to know what is happening. My wife (Phyllis) has finally nailed down a definite date for surgery to correct her deteriorated upper spinal column and have some fusion of bone fragments to rebuild the protection needed around her delicate spinal cord. The date is September 30 and I have high hopes for success to relieve a great deal of pain - even though she is dreading the new form her body will assume with a stiffness and lack of full motion she has always enjoyed. I've promised to patiently re-train her golf swing to match the new restricted range of motion. But we are getting there!

My own appointment yesterday to hear the results of scans and a biopsy of last week was a "bust." In medical terms, the results were "negative." That of course is not some kind of negative outlook for my future - merely their expression for knowing no more than we did before. Had it been "positive," that would have meant probable cancer that could then be set for treatment. But "negative" merely means we start over with new tests because whatever is in my right lung is restricting my breathing and causing a horrible cough that sometimes causes other pains, not required to be described here. Point is, we don't know what is going on inside my body - yet.

Friday I will undergo a PET scan (which is supposed to unfailingly reveal any cancer formation) and there is already planned a follow-up test which is described as a "C T scan assisted needle biopsy" which should give conclusive evidence of what the mass is made of and how it should be treated. Again - we wait.

News when it happens . . .